In Laughing at My
Nightmare, Shane Burcaw described growing up and striving for (and often
achieving) a normal life despite his spinal muscular dystrophy, a condition
causing his muscles to gradually waste away.
His follow-up, Strangers Assume My
Girlfriend Is My Nurse, mostly focuses on his adulthood, including his love
life’s challenges and rewards. Just as
young Shane strived for normalcy as a child, twentysomething Burcaw maintains a
large degree of normalcy as a young adult. It is inspiring to read about someone fighting
the urge to give into despair by depending on his loved ones without resenting
them, living his life actively, finding hope where he can, and most memorably,
using humor. Laughing at My Nightmare found the ridiculousness in Burcaw’s
situation, including, sometimes graphically and hilariously, scatological
matters; Strangers Assume does the
same but adds sex as well. As the title
suggests, some of the book’s humor comes from strangers not knowing how to
react to a man with a full-sized head but a child-sized body in a wheelchair
leading a functional adult life, including his love life.
Strangers Assume
has serious moments as well, notably when Burcaw expresses anger over a viral
story about Jerika Bolen, the girl who wished and received crowd-sourced
support for a make-believe prom followed by her planned death. Burcaw did not find the story as
inspirational as many apparently did.
“After it ran its fleeting course and the hoopla fizzled out,” Burcaw
recalls, “a child was dead and the disabled community had been dealt a serious
blow.” Another (happier and funnier)
thought-provoking chapter explains what happens when events occur requiring Burcaw
and his girlfriend Hannah, who assists him with many daily tasks, have to
switch roles temporarily and Shane comes to understand Hannah and the joys of
caregiving better.
If the idea of reading books about someone with a
debilitating disease sounds depressing, rest assured that there is a lot more
triumph—and comedy—than tragedy.
Recommended by Andrew